Welcome to Hearts for ALS NY

Our mission is to increase awareness and understanding of ALS through volunteer services, and act as a resource for patients and caregivers to improve quality of life for those affected by Lou Gehrig's Disease. Please click the following links to learn more about us, what we do, and how you can help.

What is ALS?

About Hearts for ALS NY

Upcoming Events

Donations and Support

Helping Out Is What We Do

Through volunteer work, donations, events and other types of support, Hearts for ALS New York assists those affected by ALS by providing equipment, medicine and much more. Click below to learn more about the people that we help, and how we help out. Plus, find out how you can lend a hand to people around New York State that need your assistance and support.

How Hearts for ALS NY Helps

Event Photo Galleries

Support our Efforts

The ALS Ice Bucket Challenge

The Ice Bucket Challenge to raise awareness for ALS hit the Internet in August and almost immediately became a viral trend. With celebrities, athletes, and even former presidents taking part, the campaign increased donations by 3,500 percent compared to the previous year, according to Forbes.

Did you participate in the ALS Ice Bucket Challenge? Share your videos with us by clicking here and watch others take the challenge themselves!

Submit Your Video

How It Helped

responsive carousel

Hearts   for   ALS   NY   News   and   AnnouncementsMore News and Announcements

Article: Father’s Memory Inspires A Cross-Country Run To Raise Money for Lou Gehrig’s Disease

Posted on January 22nd, 2016

Check out this article that appeared in PEF (New York State Public Employees Federation) magazine recently detailing a cross country run benefiting those affected by Lou Gehrig’s disease:

Intro: “As medical research advances, the odds of beating some diseases increase. But when someone is diagnosed with Amyotrophic Lateral Sclerosis, more commonly known as ALS or Lou Gehrig’s Disease. “ALS is not an incurable disease, it is an underfunded one,” said Steven Luther. This PEF member who works for the state Education Department Office of Professional Discipline in Rochester is making a nationwide effort to get more ALS funding. he is organizing a team of 16 runners who will state a cross-country run from the Golden Gate Bridge in San Francisco and end at Coney Island in New York – a 3,300 mile route…”

For the full text, click here: http://heartsforalsny.org/wp-content/uploads/2016/01/HeartsForALSNY-SteveLutherPEFArticle-2016.pdf

Happy New Year and Thank You!!

Posted on January 2nd, 2016

It’s hard to believe it but 2016 is here and we’re looking forward to another year of helping, fundraising and advocating for those affected by ALS in Upstate New York.

We’d like to thank everyone – our PALS, volunteers, donors, friends and family – for all of your support, love and help in making 2015 such a great year.

We closed out this year with a wonderful Holiday Party which allowed us to spend quality time with one another – thank you to everyone that attended, and a special thank you to the Downstairs Cabaret at Winton Place for hosting the event.

Photos from the Holiday Party are below (if you attended the party and took photos that you would like added to our gallery, please contact us). (more…)