Hearts for ALS NY: Announcements

Vathxira’s 585 MAKE A DIFFERENCE Charity Day

Join us to benefit Donate Life America, NKF Serving Upstate New York (National Kidney Foundation) and Hearts for ALS NY. Many ways to participate. Scramble format in the golf tournament ($400 per foursome or $100/individual) Registration will close by June 11th. We have people who sign up as individuals/pairs and we will pair you up with fun people). For those that don’t golf, we are planning a friendly style cornhole tournament that will start late afternoon the same day $10/person or $30/person includes buffet style dinner. If you care to just come for dinner, $25 (buffet style includes pasta, chicken, — (Read More)

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The 12th Annual Jeff Dunlap Celebration of Life Golf Tournament

Its that time of the year again and we are proud to announce our 12th Annual Jeff Dunlap Celebration of Life Golf Tournament! This year we will be at Victor Hills Golf Course and our special guest and all proceeds will go to Mike Dugan! Selections 4 Some Golf $500.00 USD1 Player Golf $125.00 USDDinner Only $40.00 USDDiamond Sponsor $1,000.00 USDGold Sponsor $500.00 USDSilver Sponsor $100.00 USDBronze Donation $50.00 USDTable Spinner Sponsor $50.00 USD Comments   Click here for PDF Document

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2017 Joe Marinucci Cruise for a Cure

6th ANNUAL “Cruise for a Cure” With Honorary Captain Joe Marinucci Join us Saturday, August 5th 6:30PM – 9:00PM for some fun on the water and a great cause at the Hearts for ALS NY Cruise for a Cure benefiting one of our favorite PALS, Joe Marinucci. This is the 6th Annual Joe Marinucci Cruise for a Cure and the event has been a huge success, a lot of fun and a great help to the Marinucci Family. Meet us at the Voyager Marine, Marina Drive and fun will be had all evening long including buffett dinner, cash bar, raffles — (Read More)

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Register for the Crop for Impact Event

Come spend a day with other “scrappers” and “crafters” and be creative all day. Enjoy continental breakfast, beverages, lunch, raffles, door prizes, vendors – AND help make an impact on a local organization with patients and caregivers affected by ALS in our own community. Date: Saturday, April 8, 2017 Time: 9:00am to 5:00pm Location: Greece Baptist Church 1230 Long Pond Road Rochester, NY 14526 Cost: Early Bird $35 / After February 15, fee is $40 Registration Deadline: March 18, 2017 (Limited to 60) To Register: Register and pay online using the PayPal button below (all major credit cards, and PayPal — (Read More)

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Happy New Year and Thank You!!

It’s hard to believe it but 2016 is here and we’re looking forward to another year of helping, fundraising and advocating for those affected by ALS in Upstate New York. We’d like to thank everyone – our PALS, volunteers, donors, friends and family – for all of your support, love and help in making 2015 such a great year. We closed out this year with a wonderful Holiday Party which allowed us to spend quality time with one another – thank you to everyone that attended, and a special thank you to the Downstairs Cabaret at Winton Place for hosting — (Read More)

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Winter 2015 – 2016 at Hearts for ALS NY

Happy Holidays from all of us at Hearts for ALS NY and thank you to everyone for another wonderful year in 2015! We are excited for another winter full of great events including the following: Roc the Day 2015 – December 1st Our 2015 Holiday Cookie & Wine Exchange at the Wellsville American Legion – December 10th The 2015 Hearts for ALS NY Holiday Party at the Downstairs Cabaret Theater Winton – December 14th Check back often for more details and for photos from the events once they have taken place. Thanks again to everyone for making 2015 another great — (Read More)

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New Horizons Forum to feature speakers and film on ALS (AlfredState.edu)

The Alfred State New Horizons Forum scheduled for Tuesday, April 28, will feature the documentary, “Hope On The Horizon” and special guest speakers, Donna York, president of HARK, and Alfred State alum Debra (McQueen) Quinn, who will present on Familial Amyotrophic Lateral Sclerosis (ALS). The forum will be held at 6 p.m. in the Cappadonia Auditorium of the Orvis Activities Center and is open to the public. Admission is free; however, donations will be gladly accepted at the door.

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2015 Oscar Winners Bring Attention to ALS

Last night, the 2015 Academy Award winners for both Best Actor (Eddie Redmayne) and Best Actress (Julianne Moore) brought attention to those fighting ALS during their acceptance speeches. Redmayne, who won Best Actor for his portrayal of Stephen Hawking, an ALS patient, dedicated his award to Hawking and those fighting Lou Gehrig’s disease. Julianne Moore, winner of Best Actress for “Still Alice” also paid tribute to one of the film’s creators, writer/director Richard Glatzer, who is also currently battling ALS. Please click more or scroll down to view both speeches, and visit our Donations page to help someone fighting ALS — (Read More)

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Wellsville family benefits from Ice Bucket Challenge (Olean Times Herald)

Recently, the Olean Times Herald featured a piece about one of Hearts for ALS NY’s pALS, Deb Quinn, and how she and her family are currently participating in an ALS study due to donations received through the Ice Bucket Challenge. Please read the piece below, or click here for the link on the Olean Times Herald Website: WELLSVILLE — Remember this past summer when millions of people from across the globe participated in the Ice Bucket Challenge by dumping a bucket of freezing cold water on themselves and vowing to donate to amyotrophic lateral sclerosis (ALS) research? The campaign brought — (Read More)

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