Hearts for ALS NY: Uncategorized

Register for the Crop for Impact Event

Come spend a day with other “scrappers” and “crafters” and be creative all day. Enjoy continental breakfast, beverages, lunch, raffles, door prizes, vendors – AND help make an impact on a local organization with patients and caregivers affected by ALS in our own community. Date: Saturday, April 8, 2017 Time: 9:00am to 5:00pm Location: Greece Baptist Church 1230 Long Pond Road Rochester, NY 14526 Cost: Early Bird $35 / After February 15, fee is $40 Registration Deadline: March 18, 2017 (Limited to 60) To Register: Register and pay online using the PayPal button below (all major credit cards, and PayPal — (Read More)

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Crazy ‘Bout You at St. Mary’s Place

Hearts for ALS, NY and The Caring Music Group partner in a benefit to raise funds and awareness for people living with ALS: Commonly known as Lou Gehrig’s disease. The benefit is Saturday, October 22, 2016, The Dugan Center, 15 St. Mary’s Place, Rochester, NY. Come join us for a night of heart-warming fun, recognition and renewal of purpose. Purchase Tickets: Quantity One Ticket $25.00 USDTwo Tickets $50.00 USDThree Tickets $75.00 USDFour Tickets $100.00 USDFive Tickets $125.00 USDSix Tickets $150.00 USDSeven Tickets $175.00 USDEight Tickets $200.00 USD Guest Names

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7th Annual Dice Run this September!

Join us for the 7th Annual Hearts for ALS NY Motorcycle Dice Run on Saturday, September 10, 2016! Location: “The Brick”, 5 West Greenwood Street, Andover, New York Registration will begin at 10:30am / Check back in by 4:00pm Ride at your own page. (Not a parade ride) Driver $5 / Rider $5 Chicken and Biscuit dinner is open top the public. 4:00-6:00pm $5 for all rider participants / $8 for general public Guest Speaker Debra Quinn / ALS Awareness Sponsored by: Andover Haunted House & Vietnam Vets Legacy Vets MC / American Eagles MC For more information, contact Bob — (Read More)

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Article: Father’s Memory Inspires A Cross-Country Run To Raise Money for Lou Gehrig’s Disease

Check out this article that appeared in PEF (New York State Public Employees Federation) magazine recently detailing a cross country run benefiting those affected by Lou Gehrig’s disease: Intro: “As medical research advances, the odds of beating some diseases increase. But when someone is diagnosed with Amyotrophic Lateral Sclerosis, more commonly known as ALS or Lou Gehrig’s Disease. “ALS is not an incurable disease, it is an underfunded one,” said Steven Luther. This PEF member who works for the state Education Department Office of Professional Discipline in Rochester is making a nationwide effort to get more ALS funding. he is — (Read More)

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Happy New Year and Thank You!!

It’s hard to believe it but 2016 is here and we’re looking forward to another year of helping, fundraising and advocating for those affected by ALS in Upstate New York. We’d like to thank everyone – our PALS, volunteers, donors, friends and family – for all of your support, love and help in making 2015 such a great year. We closed out this year with a wonderful Holiday Party which allowed us to spend quality time with one another – thank you to everyone that attended, and a special thank you to the Downstairs Cabaret at Winton Place for hosting — (Read More)

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Roc the Day 2015

Today is Roc the Day 2015, an annual effort to benefit local Rochester causes during the Holiday Season. Please head over to RocTheDay.org (click here) to make a donation to any of the 550 important causes included in this year’s event; including Hearts for ALS NY! Remember, your donations will always stay local and help those affected by ALS in Upstate New York, so donations will benefit locally. If you have donated already, we thank you very much for your support! Below is a letter from Roc The Day explaining this year’s mission:

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Winter 2015 – 2016 at Hearts for ALS NY

Happy Holidays from all of us at Hearts for ALS NY and thank you to everyone for another wonderful year in 2015! We are excited for another winter full of great events including the following: Roc the Day 2015 – December 1st Our 2015 Holiday Cookie & Wine Exchange at the Wellsville American Legion – December 10th The 2015 Hearts for ALS NY Holiday Party at the Downstairs Cabaret Theater Winton – December 14th Check back often for more details and for photos from the events once they have taken place. Thanks again to everyone for making 2015 another great — (Read More)

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New Horizons Forum to feature speakers and film on ALS (AlfredState.edu)

The Alfred State New Horizons Forum scheduled for Tuesday, April 28, will feature the documentary, “Hope On The Horizon” and special guest speakers, Donna York, president of HARK, and Alfred State alum Debra (McQueen) Quinn, who will present on Familial Amyotrophic Lateral Sclerosis (ALS). The forum will be held at 6 p.m. in the Cappadonia Auditorium of the Orvis Activities Center and is open to the public. Admission is free; however, donations will be gladly accepted at the door.

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Upcoming Spring and Summer 2015 Events

The snow has finally melted, the sun is shining, and Hearts For ALS NY is excited to announce a series of events taking place this Spring and Summer that are both fun and beneficial to our worthy cause.  Whether you’re a fan of fine jewelry, drinks and dancing, golf or you just want a fun day on the lake, we have a little something for everyone this year, and every event will directly benefit someone affected by Lou Gehrig’s disease in update New York. Below is a quick list of the events that we have scheduled so far.  Click on — (Read More)

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