News and Announcements

7th Annual Dice Run this September!

Posted on July 3rd, 2016

Join us for the 7th Annual Hearts for ALS NY Motorcycle Dice Run on Saturday, September 10, 2016! Location: “The Brick”, 5 West Greenwood Street, Andover, New York Registration will begin at 10:30am / Check back in by 4:00pm Ride at your own page. (Not a parade ride) Driver $5 / Rider $5 Chicken and Biscuit dinner is open top the public. 4:00-6:00pm $5 for all rider participants / $8 for general public Guest Speaker Debra Quinn / ALS Awareness Sponsored by: Andover Haunted House & Vietnam Vets Legacy Vets MC / American Eagles MC For more information, contact Bob — (Read More)


Article: Father’s Memory Inspires A Cross-Country Run To Raise Money for Lou Gehrig’s Disease

Posted on January 22nd, 2016

Check out this article that appeared in PEF (New York State Public Employees Federation) magazine recently detailing a cross country run benefiting those affected by Lou Gehrig’s disease: Intro: “As medical research advances, the odds of beating some diseases increase. But when someone is diagnosed with Amyotrophic Lateral Sclerosis, more commonly known as ALS or Lou Gehrig’s Disease. “ALS is not an incurable disease, it is an underfunded one,” said Steven Luther. This PEF member who works for the state Education Department Office of Professional Discipline in Rochester is making a nationwide effort to get more ALS funding. he is — (Read More)


Happy New Year and Thank You!!

Posted on January 2nd, 2016

It’s hard to believe it but 2016 is here and we’re looking forward to another year of helping, fundraising and advocating for those affected by ALS in Upstate New York. We’d like to thank everyone – our PALS, volunteers, donors, friends and family – for all of your support, love and help in making 2015 such a great year. We closed out this year with a wonderful Holiday Party which allowed us to spend quality time with one another – thank you to everyone that attended, and a special thank you to the Downstairs Cabaret at Winton Place for hosting — (Read More)


Roc the Day 2015

Posted on December 1st, 2015

Today is Roc the Day 2015, an annual effort to benefit local Rochester causes during the Holiday Season. Please head over to (click here) to make a donation to any of the 550 important causes included in this year’s event; including Hearts for ALS NY! Remember, your donations will always stay local and help those affected by ALS in Upstate New York, so donations will benefit locally. If you have donated already, we thank you very much for your support! Below is a letter from Roc The Day explaining this year’s mission: