News and Announcements

Article: Father’s Memory Inspires A Cross-Country Run To Raise Money for Lou Gehrig’s Disease

Posted on January 22nd, 2016

Check out this article that appeared in PEF (New York State Public Employees Federation) magazine recently detailing a cross country run benefiting those affected by Lou Gehrig’s disease: Intro: “As medical research advances, the odds of beating some diseases increase. But when someone is diagnosed with Amyotrophic Lateral Sclerosis, more commonly known as ALS or Lou Gehrig’s Disease. “ALS is not an incurable disease, it is an underfunded one,” said Steven Luther. This PEF member who works for the state Education Department Office of Professional Discipline in Rochester is making a nationwide effort to get more ALS funding. he is — (Read More)


Happy New Year and Thank You!!

Posted on January 2nd, 2016

It’s hard to believe it but 2016 is here and we’re looking forward to another year of helping, fundraising and advocating for those affected by ALS in Upstate New York. We’d like to thank everyone – our PALS, volunteers, donors, friends and family – for all of your support, love and help in making 2015 such a great year. We closed out this year with a wonderful Holiday Party which allowed us to spend quality time with one another – thank you to everyone that attended, and a special thank you to the Downstairs Cabaret at Winton Place for hosting — (Read More)


Roc the Day 2015

Posted on December 1st, 2015

Today is Roc the Day 2015, an annual effort to benefit local Rochester causes during the Holiday Season. Please head over to (click here) to make a donation to any of the 550 important causes included in this year’s event; including Hearts for ALS NY! Remember, your donations will always stay local and help those affected by ALS in Upstate New York, so donations will benefit locally. If you have donated already, we thank you very much for your support! Below is a letter from Roc The Day explaining this year’s mission:


Winter 2015 – 2016 at Hearts for ALS NY

Posted on November 25th, 2015

Happy Holidays from all of us at Hearts for ALS NY and thank you to everyone for another wonderful year in 2015! We are excited for another winter full of great events including the following: Roc the Day 2015 – December 1st Our 2015 Holiday Cookie & Wine Exchange at the Wellsville American Legion – December 10th The 2015 Hearts for ALS NY Holiday Party at the Downstairs Cabaret Theater Winton – December 14th Check back often for more details and for photos from the events once they have taken place. Thanks again to everyone for making 2015 another great — (Read More)